On a Personal Note…

Apologies to those who follow my blog and have noticed that I AM NOT WRITING. My domain name came up for renewal recently, and I considered dropping out entirely. However, after much consideration, I decided to try again.

I am undergoing treatment at USC for a rare eye disorder called Chronic Progressive External Ophthalmoplegia.  I have re-named it “CSS” (can’t see shit).  Over the years, the muscles that control eye movement have become paralyzed.  At this point, my eyes will not move side to side, or up or down.  I can still see straight ahead, but the vision is poor and is complicated by ptosis, a related condition which makes the eyelids droop: In my case, ptosis shuts off half the vision I have left.

Many people have worse problems than I have, and go on bravely with their lives and activities.  I am not one of those people.  I am a wimp.  I complain and become depressed and cranky.  At this moment, I have my eyes taped open so I can see the computer.  I was even more upset a few minutes ago because I couldn’t see enough to find the tape I use on my eyes

There is more, but you get the idea. On my good days, I try to stay active on Twitter. It is fun for me, and I can start and stop at any time with no commitment to finish or continue. I still love all the ghosts, goblins, witches, vampires and other strange beings. Love to read about them and write about them.

I will see the NeuroOpthalmologist at USC at the end of the month. I am trying not to become excited, since I do not know what the prognosis will be. I can only hope for the best.

I thank you again for bearing with me.

 

Bye for now from

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